MNDAD@70

#MNDAD@70 Update 2

I always knew that finding 70 raffles for the #MNDAD@70 was going to be a big ask, especially when I added a time limit of a year to the challenge. (If you are not sure what #MNDAD@70 read about it here)

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What’s happened in #MNDAD@70 so far?

So far I have managed a total of 31 different raffles and raised just over £800 for Motor Neurone Disease Association. (If you don’t know why I raise money for this charity, please read here.)

I have been reflecting on #MNDAD@70 of late and realised that I have put an end date for the challenge of 30/1/20 so that it was completed in one year, but why? Well, yes it was to celebrate what should have been my dad’s 70th year, but really does it have to have a time limit? I am now thinking NO!

Why take on #MNDAD@70?

Another reason for taking on the #MNDAD@70 challenge was to raise as much money for the MNDA. There is still NO cure for this horrible disease! People are still being diagnosed with this death trap of a disease, so the more money and awareness I can raise, the better. The awareness and the money could make the difference. So I set out to do 70 raffles and that is exactly what I am going to do. Regardless of how long it takes me to do it.

My dad and me.

How can you get involved?

I have been overwhelmed by the number of people that have repeatedly got involved and donated to #MNDAD@70. I appreciate that not all the raffle prizes are going to appeal to everyone, and not everyone has the funds to keep donating, but you can still get involved.

Please keep sharing the raffles and #MNDAD@70 content. Your connections may want to enter, or you may just remind someone to enter. If you have got involved or won something, please share using the #MNDAD70 and tag me in too.

More people that are aware and following/using the #MNDAD70, the more likely companies are to get involved, providing some more amazing prizes. You see lots of people offering things on social media, but your not always sure that they can be trusted. So winners, please share. I really think it will help people trust this challenge if they see winning prizes.

If you have any ideas of how to promote the challenge more, suggestions for prizes, or any words of wisdom, please feel free to contact me, or add a comment below.

Dennis Murphy (My dad!)

NO FINISH LINE UNTIL THERE IS A CURE

RUNMND EST.2014

Useful Links

MNDAD70 logo

#MNDAD70

It’s been a while since I last blogged, but as it’s half term, so I thought I’d post! If you follow me on social media, you will have seen the hashtag #MNDAD70, and hopefully you will know what it is about. But just in case this blog reaches people that are not following me, let me explain.

So my dad died in 2010 of Motor Neurone Disease. – for those that are not sure what this is, if I said Ice Bucket Challenge or Stephen Hawkins, you probably have heard of it at some point. It is the most horrendous disease that attacks the motor neurones.

I still find it heart breaking that there is no cure. I remember my dad taking part in trials to help find a cure, yet we are 9 years on from his death and people are still being diagnosed with this, knowing that they will never be cured!

January 30th 2019, should have been my fathers 70th birthday, so I had this crazy idea that to celebrate his life and raise funds and awareness, in hope that one day a cure would be found, I would try to run 70 raffles throughout the year.

I have been fundraising for the Motor Neurone Disease Association ever since my dad died, but I didn’t want to just ask people for money again, so I thought I would run raffles, so donators had a chance of getting something from it. I have been fortunate that Runr, Run Mummy Run, Hygge Bands, Sports Direct Running, Proviz, Halo headbands, Pepper Jar Creations, and Time 4 Nutrition have all donated prizes so far.

SEVENTY is a massive number, and I know that it is going to be hard work to get that many prizes, but I will keep going, just like my dad did. I would love to see a cure in my lifetime, and know that I played a little part in helping, but mostly to know that anyone who is diagnosed has a chance to fight and be cured.

View this post on Instagram

My #flashbackfriday has to be a photo of my last holiday with my dad – a week before he died of #MND . I have had many new followers recently, so I thought I’d share my reason for getting into running. . I played basketball for many years, so I always ran to keep fit for my sport. . In 2009, my dad was diagnosed with #motorneuronedisease on the 9th Nov – I’ll never forget as it was my birthday! . I had read a bit about it, but didn’t know what to expect really. My dad deteriorated pretty rapidly, he lost his ability to walk, and talk, but never lost his smile and kind ways. . My dad died 8 months after being diagnosed, and as hard as it is for all of my family and friends, it was the best thing for him. This disease is so cruel and the less he had to suffer the better. . There isn’t a day that goes by when I don’t miss him. He missed my wedding, meeting my little girl and being her granddad! . I had run a half marathon when my dad was alive, but promised him I would run a 16 mile race to raise money for #MNDA . I didn’t make the 16 mile run as I fell pregnant, but I knew I wanted to raise money and keep my promise to my dad. . I finally ran @londonmarathon in 2014 and raised money. It was there that I became part of the amazing @run.mnd group. . All have been touched by #MND and run to raise money and awareness for #MNDA . June is #mndawareness month, and we will all keeping ruining in hope that one day there will be a cure for this horrendous disease. . #nofinishlineuntilthereisacure #runmnd #mnda #runnersofinstagram #runstagram #mydad❤️ #Run #runners #instarunners #runmummyrun #ukrunchat #mndawarenessmonth

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Even if the prize that is offered doesn’t interest you, please spread the word about the raffles, as the more people that know about it, that’s more people that are aware of MNDA, and potentially more money raised.

If anyone is aware of any businesses that may be able to donate prizes to my 70, please comment below, or email.

www.justgiving.com/dennismurphy1949

 

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MNDA: The Truth about this awful disease #9

To donate: www.virginmoneygiving.com/ruthwebb10

What are the chances?

I used to think that MND was a rare disease. That’s what we were told when my dad was diagnosed, and I remember often thinking, why him? I remember getting angry, why did he have to have the disease where he didn’t have a chance to fight!

I recently emailed my fundraising link to my work colleagues, and soon found out that within my office of 9 of use, 3 have been directly affected by MND. Within my whole school, another member of staff has lost their mum to MND. It then got me thinking, how rare is it? My husband’s best friend died of MND, my sister’s friends dad died of MND. I wrote on the RunMND page about this, and was told about how another lady worked with 10 people in her team and out of the team 6 of them had a link to MND.

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The stats are scary, and worse still is the fact that THERE IS NO CURE!

To donate: www.virginmoneygiving.com/ruthwebb10

My dad and his grandson

MNDA: The truth about this awful disease #4

To donate: www.virginmoneygiving.com/ruthwebb10

Who gets MND?

MND is a disease that only affects adults, so children won’t get it. It is more common in people over the age of 50, but some adults are diagnosed when they are younger than this. MND is quite rare and only about 5,000 people in the UK have the disease. Men are affected slightly more than women.

My dad and his grandson

Read Fact 1, Fact 2 and Fact 3

To donate: www.virginmoneygiving.com/ruthwebb10

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MNDA: The truth about this awful disease #3

To donate: www.virginmoneygiving.com/ruthwebb10

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My Dad

How does MND affect a person?

The human body has lots of muscles and we use many of these to move. However, before muscles can move, they have to receive instructions or messages from the brain. The messages are then sent to the muscles by nerves. These nerves are called motor neurones.

If you want to kick a ball, a message is carried from your brain, along the nerves to the muscles in your leg to tell them to kick. You don’t feel this happening as the messages travel too quickly.

When someone has motor neurone disease (or MND for short), something goes wrong with these nerves. Gradually fewer and fewer messages get through. When this happens, the muscles won’t move properly and can start to waste away because they are not being used. This can mean that a person with MND can’t do some of the things they used to.

(Information taken from MNDA website)

My dad first lost control in his foot/leg, but rapidly MND took away his ability to walk, feed himself, and just before he died he was loosing his ability to speak. The most heartbreaking thing about the body failing is that the mind is not affected.

To donate: www.virginmoneygiving.com/ruthwebb10